Data Asset Details
Ontario Renal Network (ORN) - PREMs (Patient Reported Experience Measure)
- PHIPA Role
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Prescribed Entity (PE)
- Statement of Purpose
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The purpose of this dataset is to securely store patient experience survey data for the Patient Assessment of Chronic Illness Care and Modified Shared Decision-Making Questionnaire.
- Need for Personal Health Information (PHI)
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The PHI is required by Regional Renal Programs to inform about the experience of renal care within their program and are used to drive local improvements to care.
- Why De-identified and/or Aggregate Information will not Serve the Identified Purpose
- PHI-level data is required for data linkage.
- Data Types
Last Updated: April 07, 2026
