Data Asset Details
Ontario Renal Network (ORN) - Your Symptoms Matter (YSM)
- PHIPA Role
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Prescribed Entity (PE)
- Statement of Purpose
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The purpose of this dataset is to securely store self-reported symptom management data from renal patients in the province.
- Need for Personal Health Information (PHI)
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PHI is required to evaluate the initiative, by reviewing the symptoms of the patient population, the impact on patient service utilization, and adherence to the symptom screening portion of the YSM clinical workflow.
- Why De-identified and/or Aggregate Information will not Serve the Identified Purpose
- PHI-level data is required for data linkage.
- Data Types
Last Updated: April 07, 2026
